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What a Hereditary Angioedema Attack Looks Like

An HAE attack can look and behave differently based on the body part affected.
1. Face
If your eyes swell up, it might be hard to see. Inflamed lips can make tasks such as talking, eating, and drinking difficult. In some cases, your entire face may appear disfigured. Luckily, the swelling is temporary and will subside when the attack is over. But if you have face swelling along with symptoms in your mouth or throat, such as coughing or trouble swallowing or breathing, it can be a sign of a more serious attack that requires emergency medical help.
2. Hands
During an HAE attack, your hands may appear much larger than normal, and your fingers may curl in. Swollen hands make it difficult to perform daily tasks such as writing, eating, or holding a phone.
You may need to take a break from some regular activities and find workarounds to limit pain. For example, try using voice-to-text technology rather than texting normally, or drinking smoothies through a straw rather than eating a meal that requires more reliance on your hands. Your doctor may suggest applying ice packs or cool compresses to your hands to help alleviate some pain and swelling.
3. Feet
Swelling in the feet is another common sign of an HAE attack. Swollen feet can be painful and interfere with walking and other daily activities. You may not be able to get your shoes on your feet during the attack, and you may have to take time off from work or work from home. Ice packs or cool compresses may also be useful to help reduce pain and swelling.
4. Genitals
5. Abdomen
6. Larynx
7. Skin
A skin rash associated with HAE generally lasts a few hours to a few days, and there is currently no treatment for it; it fades with time.
The Takeaway
- Hereditary angioedema (HAE) attacks can cause extreme swelling of different parts of the body, including the face, extremities, genitals, intestines, and more.
- Proper diagnosis and treatment of HAE is crucial, as the condition can be serious and, in some cases, life-threatening.
- In some cases, HAE attacks can cause swelling in the larynx, the part of the throat used for breathing and swallowing, which can be a medical emergency that requires immediate medical attention.