Your Step-by-Step Guide to Managing a Hereditary Angioedema Attack

Once you are through the most uncomfortable or painful parts of an HAE episode and have the energy, there are a few follow-up steps that may help you better manage — or prevent — a future episode.

Keep Track of Symptoms

After the swelling goes down, continue to rest and track symptoms, says Randhawa. Use a journal or notes app to record where the swelling occurred, how long the swelling lasted, and which treatments and self-care strategies you used to manage the attack, along with how well they worked.

Stay in Touch With Your Care Team

Consider a Clinical Trial

You may also be a candidate for an HAE clinical trial. These test the safety and effectiveness of new potential treatments before they’re fully approved by the U.S. Food and Drug Administration. The US Hereditary Angioedema Association keeps tabs on active clinical trials on their website. Talk with your doctor to get a better understanding of the risks and benefits, and determine if a clinical trial could be a good option for you.

“HAE medications have made significant advancements in the last decade,” says Randhawa. Once you find the right one for you, it’ll be easier to keep symptoms under control.